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is not yet present. The // classes are added to so styling immediately reflects the current // toolbar state. The classes are removed after the toolbar completes // initialization. const classesToAdd = ['toolbar-loading', 'toolbar-anti-flicker']; if (toolbarState) { const { orientation, hasActiveTab, isFixed, activeTray, activeTabId, isOriented, userButtonMinWidth } = toolbarState; classesToAdd.push( orientation ? `toolbar-` + orientation + `` : 'toolbar-horizontal', ); if (hasActiveTab !== false) { classesToAdd.push('toolbar-tray-open'); } if (isFixed) { classesToAdd.push('toolbar-fixed'); } if (isOriented) { classesToAdd.push('toolbar-oriented'); } if (activeTray) { // These styles are added so the active tab/tray styles are present // immediately instead of "flickering" on as the toolbar initializes. In // instances where a tray is lazy loaded, these styles facilitate the // lazy loaded tray appearing gracefully and without reflow. const styleContent = ` .toolbar-loading #` + activeTabId + ` { background-image: linear-gradient(rgba(255, 255, 255, 0.25) 20%, transparent 200%); } .toolbar-loading #` + activeTabId + `-tray { display: block; box-shadow: -1px 0 5px 2px rgb(0 0 0 / 33%); border-right: 1px solid #aaa; background-color: #f5f5f5; z-index: 0; } .toolbar-loading.toolbar-vertical.toolbar-tray-open #` + activeTabId + `-tray { width: 15rem; height: 100vh; } .toolbar-loading.toolbar-horizontal :not(#` + activeTray + `) > .toolbar-lining {opacity: 0}`; const style = document.createElement('style'); style.textContent = styleContent; style.setAttribute('data-toolbar-anti-flicker-loading', true); document.querySelector('head').appendChild(style); if (userButtonMinWidth) { const userButtonStyle = document.createElement('style'); userButtonStyle.textContent = `#toolbar-item-user {min-width: ` + userButtonMinWidth +`px;}` document.querySelector('head').appendChild(userButtonStyle); } } } document.querySelector('html').classList.add(...classesToAdd); })(); Rare Disease West Michigan - Events | 黄大仙高手论坛

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Rare Disease West Michigan - Events

2025 Rare Disease Day Gathering

The Rare Disease Network, which includes 黄大仙高手论坛, Corewell Health Helen DeVos Children鈥檚 Hospital, MSU College of Human Medicine, Pine Rest Christian Mental Health Services and Van Andel Institute, will host its 6th annual Rare Disease Day Saturday, February 22, 2025, from 9 a.m. to 4 p.m., at the Prince Conference Center on 黄大仙高手论坛鈥檚 campus.

This free event will bring together people with rare diseases, caregivers and families, medical professionals, researchers, advocates and students to share knowledge and experiences, while encouraging and supporting one another.

Theme: Bridging the Gaps

Featured keynote speakers will discuss how medical care and research around rare disease is evolving and improving and the state of rare disease in Michigan. Breakout sessions will provide opportunities for attendees to learn more about navigating insurance and finances, recent advances in research, therapy services, and rare disease-focused careers.

Opportunities to Connect

Lunch will be provided. In addition to hearing from keynote speakers and attending breakout sessions, participants will have the opportunity to engage with one another and visit information tables hosted by various advocacy and service organizations.

Schedule

9:00 a.m. 聽 聽 Registration and Informational Tables
9:45 a.m. 聽 聽 Welcome聽
10:00 a.m. 聽 Keynote: State of Rare Disease In Michigan
11:00 a.m. 聽 聽Break聽
11:15 a.m. 聽 聽 聽Breakout Sessions
聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽Navigating Insurance and Finances
聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽Therapy Services
聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽Recent Advances in Rare Disease Research
聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽 聽Rare Disease-Focused Careers
12:00 p.m. 聽 Lunch (free!)
12:30 p.m. 聽 Breakout Sessions聽Repeat
1:15 p.m 聽 聽 聽 Keynote: Evolution of Rare Disease Research and Medical Care
2:15 p.m. 聽 聽 Rare Disease Research Lightening Talks and Poster Session
4:00 p.m 聽 聽Adjourn

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